This is the fourth time that Dr. Temple Grandin has joined The Luncheon Society. She joined us three times in San Francisco and one time down in Los Angeles. The LA gathering took place in a steak house and she noted, “I better have the steak—after all, it’s the industry I support.”
The first time that Dr. Grandin joined us, it was still several years before Claire Danes portrayed her in the self-titled HBO movie. She was known within autism circles as well as the beef industry—where she redesigned cattle chutes for a more humane approach for processing. She had given an interview on NPR’s Fresh Air with Terry Gross that was so enthralling that I pulled the car to the side of the freeway to listen to it. I think I arrived late an appointment and blamed it on an imaginary accident.
How does somebody on the spectrum think? She explained the difference this way. She would say, “Close your eyes and imagine a church steeple in your mind.” As we closed our eyes, we all pictured a singular steeple merged from all of the churches we’ve ever seen.
However, for an autistic person, hundreds of mental pictures might occur. Dr. Grandin would say, “it’s like Google Images—that is how somebody with autism thinks. Not wrong, but different.”
Now she was internationally known. The movie based on her life was an uplifting affair that garnered several Emmy Awards.
As we have met over the years, Luncheon Society members with autistic children would join us for lunch, and she would pepper them with questions. She wanted to know how they interacted with their parents. Did they engage in games with others? Did they help out around the house? Did they put away the dishes? Were they polite with others?
She felt that she had to learn how to behave in non-autistic manner, as if she was an actor on a stage.
She remains convinced that Silicon Valley was founded by people who found themselves somewhere on the spectrum—who else could remain focused on miles upon miles of code without going crazy?
It was perhaps miraculous that Temple Grandin was not institutionalized at a young age; it was often the sad fate for many who displayed autistic behavior in the late 1940’s. There were no tests or any bumper stickers that highlighted “autism awareness” back then. All parents knew was that their child started to regress at around the age of two. Some medical professional even felt that a mother’s coldness might result in an autistic child but decades later, intensive research would begin to unlock the mysteries of the mind and render that diagnosis cruel.
Thoe who were autistic were often locked away in modern-day snake pits, to be warehoused and forgotten. However, the Grandins were a wealthy family—her ancestors made their money in a variety of business ventures–and Temple herself had the benefit of having a headstrong mother. She made sure that special teachers were available. Her mother also made sure that young Temple would always remains part of the family, and not locked away either figurately or literally.
Her big question now is what happens to a generation of autistic adults once their parents pass away? How will they be prepared for a life that is essentially alone? Will they be able to fend for themselves? That is a question that we will have to grapple with as a society.
Here is a great review of the book, by Robert Findling, which is worth reading.
“We do not fully understand the neurobiology or the precise causes of autism. While this assertion may be valid, the pace at which researchers are generating scientifically sound information about this syndrome has increased substantively in recent years. The Autistic Brain, co-authored by Temple Grandin and science author Richard Panek, is a compelling work that effectively communicates and interweaves several perspectives on autistic disorder that might otherwise seem divergent.
As many readers familiar with autism are aware, Grandin received a doctor of philosophy degree in animal sciences, is a professor of animal science at Colorado State University, and has written and spoken extensively about her own experiences as a person with autistic disorder. Perhaps the world’s most famous autistic person, the 62-year-old, cowboy-shirt-wearing Grandin is an animal scientist and slaughterhouse designer who has helped people break through the barriers separating autistic from nonautistic experience.
Grandin’s fourth book is both a cogent summary of scientific advances in the field and a personal, firsthand account of the clinical relevance of such research. This makes the book truly translational at its core. In the first chapter, the authors use Grandin’s own clinical care as a child as a heuristic reference to how autism has been conceptualized over the years. The authors then engage in a cogent discussion of whether autism could be considered a form of brain damage or a psychological outcome of poor parenting, from both a historical standpoint and a personal perspective. The chapter also contains thoughtful analysis about the impact that nosology has had on people with certain features, such as extreme social anxiety or an autism-spectrum diagnosis. Although the authors are not timid about rendering their own opinions, they effectively communicate their rationales by extrapolating scientific evidence.
Other chapters focus on recent advances in neuroimaging and genetics. The chapter on neuroimaging provides a thoughtful and succinct overview of both the promise and the limitations of this research tool in a way that readers without a neuroscience background can understand. Using, in part, Grandin’s techniques from her teaching as a university faculty member, the authors provide a brief primer of the anatomy of the brain, followed by a discussion about the relationship between the clinical correlates of structural brain imaging and behavior. The authors also consider the relevance of functional imaging and studies of brain connectivity to the study of autism, as well as genetics research and its relevance to people with autism.
One particularly interesting chapter focuses on sensory problems in people with autism. According to the authors, sensory disorders appear to be quite common in people with autistic disorder. Grandin notes that some people are oversensitive to stimuli, not responsive enough, or likely to seek out certain types of sensory experiences. Despite the fact that these phenomena are both prevalent and highly distressing to people who experience them, the scientific literature on the topic is surprisingly scant. The same chapter also addresses processing problems associated with the five senses. One of the unique aspects of the book is that its authors suggest means by which to identify people with specific sensory-processing difficulties. In addition, it includes helpful suggestions about how to lessen the burden of people who have these problems.
The authors then grapple with the shortcomings of our descriptive nosology, as well as the putative impact of changes associated with going from DSM-IV to DSM-V (codes that mental-health professionals use to describe the features of mental disorders). Grandin and Panek note that autism is associated with behavioral features in addition to interpersonal ones, albeit oftentimes to a greater degree than in people without autism. Referring to focusing on a single descriptor outside of the context of an individual’s unique circumstances as “label locked” thinking, the authors make a compelling argument about how the scientific study of single symptoms, rather than on broader and less precise diagnostic entities, could inspire others to view people with autism as individuals.
The next chapter considers putative strengths of some people with autism. Perhaps more important, the authors discuss how these strengths might manifest themselves in real-world settings. One such strength is attention to detail; another asset is the ability to identify patterns that others do not readily discern. What follows is a chapter that considers putative means by which people with autism might be more successful in mainstream society. The authors do not minimize the vicissitudes of people with autism. Rather, they focus on assets upon which successes can be built.
Due to Grandin’s personal accounts of her experience with autism, The Autistic Brain is very thoughtfully written. It discusses recent scientific advances about autism in an easily understandable format. At the same time, the authors do a good job of not oversimplifying the material. They pose thoughtful questions about why key clinical features of autistic disorder have not received the amount of scientific research they deserve. Readers will come away from this book appreciating the challenges associated with scientific pursuits while realizing where gaps in research exist. But what makes this book unique and compelling are its firsthand accounts of how autism impacts a person’s life, its explanations of why scientific advances matter, and its consideration of the potential strengths of people with autism—despite their difficulties.”